Rare genital malformations in women’s health research: Sociodemographic, regional, and disease-related characteristics of patients with Mayer-Rokitansky-KüsterHauser syndrome
The Mayer-Rokitansky-Küster-Hauser syndrome, MRKHS, is a rare (orphan) disease characterized by the aplasia or hypoplasia of the uterus and the vagina. In women's health research, little is known as to how much care provision for patients with MRKHS takes into account their socio-demographic together with their clinical characteristics.